Motorcycle dice run and benefit to sponsor the TJ Joy Memorial Fund for PMG and epilepsy set
Thomas Joseph “TJ” Joy, the only child born to Joseph and Angela Joy, was a special little boy with special needs resulting from a rare brain malformation called PMG (PolyMicroGyria). PMG causes feeding problems, developmental delays, mental retardation, and epilepsy. One week shy of TJ’s birthday, he suffered a seizure in his sleep, in which he was unable to wake from. TJ was declared dead on Nov. 7, 2010.
Angela and Joseph were later told that a seizure mattress alarm could have been purchased preventing his death. The TJ Joy Memorial Fund was established in TJ’s memory to raise funds to purchase these seizure detection mats, seizure detection smart watches, anti-suffocation pillows, and other potential life saving needs incurred by PMG and epilepsy patients. These devices are NOT covered by insurance!
The TJ Joy Memorial Fund hosts an annual motorcycle and dice run and family friendly benefit as its major fund-raiser, “THE JOY RIDE.” The event will take place Saturday, Aug. 26 from 11 a.m. to 6 p.m. The dice run starts at Jamestown Harley Davidson (1951 E. Main St. in Falconer) and routes throughout beautiful, scenic Western NY and concluding to the J. Carter Knapp American Legion Post 953, 6 Cedar St. in Forestville, where the benefit festivities will take place.
The committee is excited to announce that there will be live music provided by Beach Boys cover band, The Kokomo Time Band. Other activities include, donkey cart rides, photo-booth by: Pic-In-A-Box, and bounce houses by Jumping Jax. There will be cash prizes, a massive ticket auction, raffles, contests, bake sale, and giveaways. A few of the items to be raffled off include a 55″ wide screen/flat screen 4K ultra high def 2160p television, Amazon Echo Dot, Amazon Fire Stick, turkey deep fryer, and a Keurig coffee maker.
Pre-registration: $15 per biker, day of registration: $20 per biker, and $5 per buddy. Admission to the benefit: $10. Dice run participants, volunteers, and kids are free! Come out and join in for all the fun while supporting children like the late TJ Joy! A pulled pork dinner provided by Fred’s, EBC, and Tom’s Family Restaurant and beverages are included.
To pre-register online or to apply to be a recipient added to the wait list, go to www.tjssavinglight.org.
On Facebook Events: https://www.facebook.com/events/491974264480554/.
Monetary donations can be sent to: TJ JOY FUND at M&T Bank 10 S. Main St., Silver Creek NY 14136 or via paypal to email@example.com.
To donate to the Chinese auction, call or text Paula Joy at 410-0373.